Interviews with inspiring clinicians, scientists, researchers & geneticists in the field of epilepsy - out every Thursday.
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Archive
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- December 2021
Advanced midwifery practitioner Kim Morley specialises in helping people with epilepsy who want to have children. Kim explains how she has and does positively influence the lives of people affected by epilepsy when it comes to having children (or not!).
Allan Bayat of the Danish Epilepsy Center speaks of his Ph.D. in genetic epilepsies, his passion for translational medicine for the children and families affected, and future studies into the impact of modified treatments.
Hear how a Dravet gene therapy is to be used (treating the cause rather than the symptoms), the extraordinary benefits, but also the next steps and the long journey from patent - pharma - patient!
Scientists Moran Rubinstein from Tel Aviv University in Israel and Eric Krema from Universite de Montpellier in France speak of their exciting project into gene therapy for the rare genetic epilepsy Dravet Syndrome!
Epilepsy surgery isn’t an experiment, it’s a treatment! Peadiatric neurologist & epilepsy surgery specialist Luca De Palma talks about why people should be confident in epilepsy surgery.
Luca De Palma explains his pre-surgical evaluation of children being considered for epilepsy surgery, the potential risks and benefits of having surgery, and the benefits of having surgery earlier in life.
Peadiatric neurologist at Gazi University, Esra Serdaroglu, talks of the exciting treatment for some epilepsies called VNS (or vagus nerve stimulation), plus her research into VNS long-term benefits and side effects.
Katrine Johannesen from the Danish Epilepsy Center explains to us the value of genetic testing for adults with refractory epilepsy!
Who knew that a genetic issue restricting glucose absorption (to the brain) could cause an epilepsy?! Kathleen Gorman talks about genetic epilepsies - inc. GLUT1 Deficiency Disorder.
Are the "episodes" NEAD? Fainting? Behavioural issues? Michael Kentris explains how to obtain a 100% accurate diagnosis, the risks of misdiagnosis, and the "weird questions" to ask patients!
Accurately diagnosing & treating epilepsy can be a huge challenge when a hospital is underresourced. Michael Kentris explains how he manages with only 3 EEG machines…
Learn why genetic epilepsy syndromes (largely found in young children) have been reclassified - and not without thought or consideration! With peadiatric consultant neurologist & researcher Sameer Zuberi.
Consultant Paediatric Neurologist Sameer Zuberi speaks of precision medicine for children with genetic epilepsies - with a special mention of the rare epilepsies Dravet & CDKL5.
"There is an unacceptable acceptance of having recurrent seizures and not opting for something like epilepsy surgery" - epileptologist Ajay Asranna explains the benefits of temporal lobe resections.
Ian Bone: a neurologist, honourary professor, writer, and dad to a son with epilepsy, speaks from the heart - telling us a bit about his experiences, what he’s learned, and his new book about epilepsy: “Sacred Lives”.
Learn of the neuroimaging technique called magnetoencephalography – or MEG - with Omar Danoun, an epileptologist from Henry Ford Health in Detroit.
Hear about what Psychogenic Non-Epileptic Seizures are, and how children experiencing them can be effectively treated. - with paediatric clinical psychologist Tyson Sawchuk.
Hear from peadiatric neurologist and scientist Amy McTague who helps babies and families when it comes to the diagnosis, treatment, and care for the babies who have a genetic epilepsy.
Hear of the study into the safety of the COVID vaccine for children with epilepsy - with neurologist and epileptologist Sebastian Ortiz.
Epilepsy research lead (PI) and lecturer in pharmacy, Cristina Resckhe talks about research into how microRNAs and circadian rhythm disruptions lead to epileptogenesis and seizures.