Epilepsy
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Mental Health
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Brain Surgery
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Neuroscience
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Epilepsy - Mental Health - Brain Surgery - Neuroscience -
Check out the my short article in The New York Times!
Podcast Host: Epilepsy Sparks Insights
Torie interviews global-lead clinicians, scientists, and geneticists from around the world regarding their work on and research into the epilepsies. Topics include neurosurgery, gene therapy, rare epilepsies, mental health, stroke, suicidality, gut microbiota, climate change, epilepsy nurses, sexual health, translational medicine, diagnoses, genetic testing, and so much more! It has been said many times that Torie is “the bridge between clinicians, researchers, patients, and families.
Podcast Host: Torie Robinson & Epilepsies: Torie answers common questions about the epilepsies - sourced from the public, People With an Epilepsy, Carers, Clinicians, Scientists, and more!
Research - PPI Lead
Involved in multiple research projects including those covering stigma, medtech, and funding.
Public speaker
Having had both brain surgery for her epilepsy and stints in psychiatric hospitals, Torie provides a gripping, deep insight into the real world of psychiatric and neurological illnesses.
Charismatic and engaging, Torie Robinson employs her personal and professional knowledge and experience of the worlds of epilepsy, mental health, genetics, and diversity & inclusion, to speak candidly on what it means to be different and how organisations can be both inclusive and save lives.
Adapting her style from informative keynotes to positively uplifting and entertaining storytelling, Torie both captivates and educates an audience.
Whether clients are corporate or third sector, based in Europe, North or South America, Asia, Africa, or Oceania, Torie relates personally, professionally, and culturally.
Writing
Torie is a writer for multiple publications.
Current & Previous Clients
Additional Roles
CEO & Editor
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Podcast Host
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YouTube Host
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Governor
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Patient & Public Involvement
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CEO & Editor - Podcast Host - YouTube Host - Governor - Patient & Public Involvement -
Founder & Editor for Epilepsy Sparks
Podcast Host for Epilepsy Sparks Insights
Podcast Host for Torie Robinson - Epilepsy
PPI & Marketing Lead for PRISM (Personal, Real world Insights into Seizure Monitoring) - funded by Innovation UK, UK
Governor for South London & Maudsley NHS Trust, UK
Patient Ambassador Board Member for UCB, UK
Advisory Board for Lived Experience of Stroke, Epilepsy and Dementia (ABLE), iNeuron, Canada
Patient Advisory Board Member for Neurosense at Biostrike, Portugal
PPI for NHS South East Genomic Medicine Service Alliance, UK
PPI Public Reading Group for Patient Leaflets at King’s College London NHS Foundation Trust, UK
Contributor to the UK Government APPG (All-Party Parliamentary Group) for Epilepsy, UK
Member of the International League Against Epilepsy (ILAE) British Branch, UK
Follow Torie on YouTube, Podcast, Twitter, LinkedIn, Facebook, Instagram, and TikTok
News
Times Radio
GB News
Sky News
Current Appointments
Blog
Testimonials
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Torie is a passionate and inspiring person. I have met Torie several times and she gave presentations on events, meetings, and for our people working at Byteflies to share her story and give context on epilepsy and the importance of the development of new technologies that can help people living with epilepsy. We didn't only learn a lot of her, but it is also extremely motivational to me personally and the entire team. Thanks Torie! Keep on doing what you are doing. You spark our enthusiasm!
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Torie is an outstanding spokesperson for both Mental Health and Disability Awareness. I thoroughly enjoyed and benefited from her engaging presentation for the International Day of Persons with Disability. What really impressed me was her natural ability to articulate complex and very personal information in a down-to-earth and humble way. It was so thought-provoking, leaving me wanting more and 'sparking' questions and contemplations about my own journey. Tories’ professional yet personable approach was a welcomed breath of fresh air and vitally healthful! I would highly recommend her to be a speaker for any professional or charitable organisation. On a wide range of topics and themes.
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I would highly recommend Torie as a speaker to any firm wishing to embrace and implement diversity and inclusion in the workplace.
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Not only is Torie’s own story of courage through adversity amazing as a standalone piece, she possesses a wealth of knowledge from her research and travels in regards to Epilepsy and its association to mental health.
“No John…I’m not proud of or happy to have epilepsy, I’m not going to celebrate having this awful, restrictive condition that negatively impacts not just my life, but the lives of millions worldwide. Do you think that I should celebrate it if I had, for instance, a limb amputation? I don’t understand…!” 😂