Torie Robinson Torie Robinson

Torie speaks live on Times Radio about the appalling Sodium Valproate/Epilim crisis/debacle. With Jenny Kleeman.

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Associate neurologist & epileptologist Julia Jacobs from Alberta Children's Hospital & the University of Calgary, Canada, talks about her wonderful initiative to educate and empower children with epilepsy regarding their condition.

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Trying to stay safe from bombs in her bathroom, meet Olha Tychkivska, a peadiatric neurologist from Lviv City Children's Clinical Hospital in Ukraine. Every day Olha is working to save the lives of children with epilepsy whilst the country is attacked.

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Dr. Sophie Adler talks about her Multi-centre Epilepsy Lesion Detection research project and how this enables neurologists and neurophysiologists to more effectively Identify Brain Lesions (frequently causing epilepsy) Through Machine Learning.

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Meet Svetlana Faktorovich, a neurologist from Marcus Neuroscience Institute, Boca Raton Regional Hospital, in Florida, USA. Originally from Kyiv, Ukraine, Svetlana is now working with multiple bodies to export anti-seizure medications to people from Ukraine who have epilepsy.

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Laureate Prof. Ingrid Scheffer & Asst. Prof. Michael Hildebrand from the University of Melbourne share their research into the genetic links between febrile seizures and a child’s likelihood of developing epilepsy.

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Donna Walsh, CEO at the International Bureau for Epilepsy tells us what the organisation is doing right now and what they plan to do to help people with epilepsy in Ukraine.

If you are interested in helping, contact Donna: donnawalsh@ibe-epilepsy.org

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Lori Hairrell, the program developer from the non-profit ROW Foundation, US, speaks of providing anti-seizure medications to people with epilepsy in Ukraine - and how we can help - by donating just $5/£4/€4 or just sharing this video!

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Nana Akua interviews Torie Robinson about what it's like to have epilepsy, what to do if someone has a seizure, some strange beliefs that people have, and why no one should be embarrassed to ask a question!

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Dr. Volodymyr Kharytonov, the neurologist and psychiatrist from Kyiv, Ukraine, is somehow smiling and saving the lives of people affected by the epilepsies! Please watch/listen to this for an uplifting moment in all of this turmoil. Learn how you can help, easily.

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Rohit Marawar from Wayne State University, in Detroit, Michigan, tells us all about epilepsy and dementia in older adults; speaking of his research and how he helps his patients with diagnoses, care, and the cognitive process of memory.

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Piotr Zwoliński and Łukasz Sosnowski from Neurosphera and EMERGEN speak of their desperation for anti-seizure medications in Ukraine. The war has caused a shortage but without a steady supply of these drugs from pharmaceutical companies, many people will have seizures, suffer injury, and in some cases, will die.

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Brain tissue must be studied to improve our understanding of the epilepsies - Eleonora Aronica, professor of neuropathology at the University of Amsterdam, tells us all about her work in the arena.

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Genetic epilepsies are far more common than we ever realised. Learn from geneticists, scientists, neurologists, and neurophysiologists from the Danish Epilepsy Center.

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Samuel Terman talks about his research into adherence to medications, polypharmacy, deprescribing, and the high rate of multiple disabilities amongst those with epilepsy.

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Hear from Mike Kerr; a globally recognised, award-winning neuropsychiatrist who talks about his specialist career in improving the lives of people affected by epilepsy - alongside learning disability, and mental health conditions.

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Hear from Wesley Kerr; a clinical epilepsy fellow at the University of Michigan, US, and a machine-learning statistician who is working to improve the lives of people who experience epileptic and/or non-functional seizures.

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Sally-Ann Remnant, a clinical nurse specialist in epilepsy, talks to us about her work and study into the impact of constipation upon people with epilepsy.

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Being An Epilepsy Research Scientist - Christos Lisgaras - Scharfman Lab, NYU Nathan Kline Institute for Psychiatric Research

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Learn about the ultra-rare epilepsy: Alternative Hemiplegia of Childhood: Rosaria Vavassoria and Alexis Arzimanoglou talk about the disease & how far the understanding of AHC has come over the past decade.

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