Written By Torie Robinson

What are Infantile Epilepsy Syndromes? - Stéphane Auvin, Robert-Debré University Hospital & Université de Paris, France

Podcast:

A great explanation by epileptologist & neuroscientist Stéphane Auvin of what Infantile Epilepsy Syndromes are, potential disease-modifying treatments, steroids, and research!

    • Stéphane intro

    • Challenges in diagnosing Infantile Epilepsy Syndromes

    • Symptom examples

    • Diagnosis delay consquences

    • Disease-modifying treatments

    • How the steroids work

    • Aetiology (cause) - driven research

  • Stéphane Auvin, MD, Ph.D., is a Child Neurologist & Epileptologist at Hôpital Universitaire Robert-Debré, Université de Paris, France, Full professor at Robert Debré University Hospital & Paris-Diderot University, Paris, France. He conducts the Epilepsy program and the center for rare epilepsies at Robert Debré University Hospital, APHP, Paris. Stéphane also conducts experimental research works in the INSERM U1141, Paris.

    Stéphane is the coordinator of the éPiRaReS consortium (three Parisian epilepsy centres) and a full, active member of the ERN EpiCARE.

    Stéphane’s clinical and research activities are focused on peadiatric epilepsy and its treatments. His research team is working on inflammation-epilepsy, on the ketogenic diet, and Anti-Seizure Medications (ASMs) in the developing brain. The Epilepsy programme at Robert Debré Children's Hospital, Paris, is involved in ASM development and clinical trials (PK, Phase II, Phase III, and Phase IV). Stéphane is an author of more than 200 peer-reviewed papers or book chapters and has been a consultant to more than 20 companies re ASM drug development and clinical trial design.

    Other positions

    • Vice President of International Relations at The French League Against Epilepsy (LFCE)

    • Associate Editor for Epilepsia

    • Past President of the French Pediatric Neurology Society (2019-2022)

    ILAE Committees:

    • Co-Chair of the Regulatory Affairs Task Force (2021-2025)

    • Past-Chair of the Pediatric commission

    ILAE Member of:

    • French Chapter

    • Aetiologically Driven Syndromes Task Force

    • College of Translators - French

    • Commission on Medical Therapies

    • Paediatric Psychiatric Issues

    • Peadiatrics Commmission

    • Regulatory Affairs Task Force

    • WONOEP Task Force

  • LinkedIn: Stéphane

    Twitter: stephane_auvin

    Hospital: Hôpital Robert-Debré

    The Reference Center for Rare Epilepsies at the Robert-Debré University Hospital (CRéER): Link

    EpiCARE: Full members of EpiCARE

    Publications: ResearchGate

    ILAE: ILAE

    LFCE: Can my child practice a sports activity?

 
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Other episodes:

 

Helplines, email address, and website for Ukrainians seeking Anti-Seizure Medications.

 
Torie Robinson
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