Rébecca Hubert is a French parent advocate and vice secretary of Alliance Syndrome de Dravet, sharing lived experience of family life with Dravet syndrome and contributing caregiver insight to advocacy and research.

Prof. Rima Nabbout is a paediatric neurologist specialising in rare and complex epilepsies, including Dravet syndrome. She leads major European research and clinical initiatives focused on improving care pathways and quality of life.

Prof. Sándor Beniczky is a leading neurologist, clinical neurophysiologist, and epileptologist, known for his work in EEG, seizure detection, tech, and international epilepsy research collaborations.

Prof. Nicola Specchio is a paediatric epileptologist specialising in epilepsy syndromes and developmental epileptic encephalopathies. His work focuses on improving diagnosis and care for children with complex epilepsies.

Paediatric neurologist and epileptologist Dr. Charbel El Kosseifi specialises in childhood epilepsy, neurodevelopment, and clear, accessible communication.

Cheryl Tveit is an experienced nurse, educator, and medical writer who specialises in making complex health information clear, accurate, and accessible.

Dr. Claire Behan is a Lecturer and Programme Director in Neurology Nursing whose FutureNeuro-funded PhD explored biomarkers for seizures and epilepsy. She’s passionate about translating research into real-world care.

Dr. Chris Greene is a PI at RCSI & FutureNeuro. His research focuses on how changes in the blood-brain barrier contribute to neurological disease and how restoring vascular health could benefit people with an epilepsy.

Dr. Ricardo Morcos is an epilepsy specialist neurologist at UCLH Hospital for Neurology & Neurosurgery, focusing on epilepsy surgery, neuroimaging, & personalised pathways for refractory temporal lobe epilepsy.

Karen McLeod is an Epilepsy Specialist Nurse and Independent Nurse Prescriber in Lincolnshire, with a specialist interest in health inequalities and improving epilepsy care for underserved populations, e.g. people in prison.

Dr. Gagandeep Singh is a Professor of Neurology and the Chair of the International League Against Epilepsy, Education Council, and Primary Care Task Force.

Dr. Florien Boele is an Associate Professor of Medical Psychology at the University of Leeds and SEIN. Her research explores family caregiving, quality of life, and symptom management.

Dr Ewan Nurse is a Principal Fellow in the Department of Medicine (St Vincent’s Hospital) at the University of Melbourne. He leads collaborative projects that bridge academic research and industry in the field of epilepsy.

Paediatric Neurologist, Professor at Harvard Medical School, and Director of Epilepsy & Clinical Neurophysiology at Boston Children’s Hospital: Dr Phillip Pearl.